My Experience
I was so nervous. I read the prep instructions multiple times and watched the informational video twice. I researched what to expect and what to bring, making sure to pack a blanket, water with electrolytes, and snacks. Dressed in purple for lupus solidarity, I hoped for the best.
Upon arrival, everyone was incredibly kind and accommodating, which helped ease my nerves. Despite this, I was sweating profusely, and my blood pressure spiked to 164/112. I anxiously hoped they would find my vein easily and that the IV wouldn’t hurt. I couldn’t bear to look.
Brittany, the nurse, was a godsend. She talked me through every step, which calmed me considerably. She noticed my Hawaiian heritage bracelet and engaged me in a conversation about Hawaii, hula dancing, and my family. As the infusion began, she played Hawaiian music, which meant the world to me.
I was initially afraid to move, worried about disturbing the IV and feeling any discomfort. Gradually, I became more comfortable, propped my feet up, and started scrolling on my phone. Although I was in a room by myself, I kept the door open, conveniently located across from the nurses’ station. There was a bell to ring if I needed anything, but the nurses frequently checked on me to ensure I was okay.
Before I knew it, the infusion was over. They checked my vitals, and my blood pressure had come down to 146/92—still high, but my body probably needed more time to calm down. After removing the IV, I had to wait for 15 minutes to ensure I didn’t have a reaction and that I was fine to drive home.
I felt pretty good, with only a slight headache. Unfortunately, I had to log back into work for a couple of hours, though I wished I didn’t have to. I needed rest, which I was able to enjoy for the remainder of the night.
For those preparing for their own infusion day, I hope sharing my experience helps you feel more prepared and less anxious. Remember to take care of yourself and allow time to rest afterward.